Dr. Toth came by and took the stitches out of Milo’s eyes today. Very exciting. I couldn’t get a picture of Dr. Toth in action, since it was kind of distracting, but here’s Milo without his eyes stitched closed.
No eye stitches. Hooray!
He still won’t open his eyes though. Presumably because when you’re sedated, you don’t need to. The nurse lifted his eyelids when the stitches where first removed, but he didn’t like the bright lights too much.
I mentioned in an earlier post that they where changing up Milo’s meds a bit, getting him ready to wake up. What they are going to do is give him propofol tonight. It’s a sedative that will put him to sleep. Then they turn off the pain meds all together and wait 12 hours for them to metabolize. Then they’ll remove his breathing tube and stop the propofol. He’ll wake up, and be grouchy as heck since he’ll have withdrawal symptoms from the pain meds.
Oh, and if propofol sounds familiar to any of you, it’s because it was recently in the news. The nurses jokingly refer to it as the MJ drug. 🙂
That’s it for now. Probably there will be more tomorrow after Milo has been extubated and is awake.
That’s my handsome boy, my super hero “MiloMan”
A friend at church saw my 5-month-old baby girl today and told me about cute Milo Man. My little girl was born with Apert Syndrome and will undergo her first cranial surgery on April 1st. She too will have to have the midface surgery when she is 3 or 4 years old. Thank you so much for sharing your story and pictures. Although reading your blog makes me nervous for the future, it gives me a grasp of what’s to come as well as hope for a good outcome. Best wishes to you and to amazing Milo!
Oh wow! So much has happened since I last checked the blog. He looks like he is progressing wonderfully! I can definitely see a difference! Looks like he does have the stitches off now, but I was going to let you know I probably did have to have stitches done too when I was really young but I don’t remember for sure. I was going to suggest listening to music or stories too, it looks like you have some really great friends that took care of that for you!
I also read the part about Milo having the choking incident. That happened to me too right after my surgery. Not fun. But they are always so good in ICU to get that taken care of immediately. He is such a tough little guy!
Wow! That is all great news. The stitches came out early (well you said 10 days) We all can’t wait to see him awake.